Terry Cohen, a young adult with Myotonic Dystrophy never wrote a book, and then after graduating from high school, he decided to write one dedicated to all young people with progressive disabilities and seeking a full life.

Terry writes-- he has a disability and disease inherited from his mom, and must face it every day of his life. As a teen, he struggled the most, and then it hit him-- "My disability isn't in charge of my life. I am."

It was up to Terry to make his life worthwhile, despite all his problems.

Here are just a few of the skills he writes about:

--Getting doctors to stop talking over your head and scaring you

--Finding healthcare buddies who really care about you, not just treating your disability

--Making good friends

--What to do when people don't give you a chance or expect next to nothing from you

--Having fun; enjoying your life despite your limitations

--Achieving the goals you set for yourself

--Living the life you want