Description - Every Precious Breath by Tom Valenta
In EVERY PRECIOUS BREATH the author tells the story of his two grandsons and discovers that people living with Cystic Fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational. The book follows the life and death experiences of people with Cystic Fibrosis and their families. For families there is the burden of caring for a child who every day requires dozens of pills, inhaled medicines and airway clearance. There are the frequent trips to clinics, hospital and hospital in the home. For people with Cystic Fibrosis there is the knowledge that they have shorter life expectancy than their peers, that they may require lung and other organ transplants and that their ambitions for family and career will be tempered by their condition. For them every breath they take is indeed precious.
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